Tag Archives: DKMS

Happy New Year… and thank you!

Taking the opportunity of the new year, Joon and her family would like to express their gratitude to the following organizations and individuals who contributed to the web campaign to help Joon find a matching donor.

Donor registration – events – drives

Public Awareness

Team Joon Blog – Facebook – Twitter – Flyers – email – online fora

  • The Knowledge and Innovation Team of UNDP in Bratislava who gave advice for the blog, designed graphics, promoted the blog via social media and helped for the drafting of content: Giulio, Blythe, Jura, Justyna.
  • For the initial setup and content drafting of the blog to launch the search for a donor: Marjolaine, Thibaut & Veronique, Agnes B, François.
  • For the Facebook page setup, Saveria and Blythe.
  • For the translations of the blog in 9 languages… : Kathleen, Thibaut, Dominique, Cécile, Narjess, Oumama, Trang, Tu, Lucy, François,  Veronique L, Jeehae and their family/friends.
  • For the preparation and design of flyers: Nathalie and her friends.
  • For spreading the word through distribution of flyers, email, online forums, Twitter, Facebook: Charlie, Agnes DLT, Pierre & Véronique, Sylvie, Laurianne and her father Siegfried, Savéria, Candice, Kathleen, Veronique HG, Nathalie, Martial, Thibaut.

A special thanks to:

  • Marjolaine for taking care of the overall coordination of the web campaign and for reaching out to many organizations.
  • Tu for the countless translations and for mobilizing the vietnamese community in Geneva and Paris.

And of course, the identification of the donor was made possible thanks to the Hopitaux Universitaires de Genève and the Swiss Blood Stem Cells who did coordinate the search worldwide.

Finally, there is also one person whom we should thank above all, we do not know her name, but she is the one who first registered as a donor, and went through the entire process to donate her stem cells for Joon. Wherever she is, our heartfelt gratitude goes to her.

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Donor Drive for Joon in Germany

With the support of DKMS Deutsche Knochenmarkspenderdatei, a German-Vietnamese Association based in Aachen will organise a donor registry drive for Joon on 23 November.

This drive is an organized effort to inform, educate, and recruit potential marrow bone donors within the Vietnamese community.

At the drive, volunteers will inform all interested people about the process of becoming a potential marrow donor by distributing flyers and answering questions. When a person decides to register as a potential marrow donor and be part of the DKMS Registry, he/she will be asked to complete a consent form. After ensuring that the registrant is eligible to be a potential marrow donor, a tissue sample is collected using a mouth swab and sent to a lab for human leukocyte antigen (marrow) typing.

For more information about this event, please visit the site of Deutsch-Vietnamesischer Freundeskreis e.V.
http://dvfaachen.de/2013/10/22/help-joon/

joon_flyer

See also the registration page established for Joon on the DKMS website, enabling potential donor to register online:
https://www.dkms.de/en/joon/

People living in the UK can register as potential donor through DKMS UK (Delete Blood Cancer UK):
http://www.deletebloodcancer.org.uk/joon

If you live in the US, a similar page is also available on the Web site of DMKS Americas (Delete Blood Cancer), established in the US to increase and diversify the donor registry.
http://www.deletebloodcancer.org/joon/

In Poland, please see: http://www.dkms.pl

Through these links, it takes only few minutes to register as a potential donor.

Press Release – DKMS – Together for Joon

Minh-Khai Phan-Thi and Marcel Nguyen support the worldwide search for a suitable stem cell donor

Tübingen/Berlin, 12 August 2013 – 18-year-old Joon, originally from Vietnam, has blood cancer and desperately needs a stem cell donation. To help her, the German Bone Marrow Donor Register DKMS, actress Minh-Khai Phan-Thi, gymnast Marcel Nguyen and the German Gymnastics Association have joined forces to call on everybody – and especially people of Vietnamese origin – to sign up as stem cell donors.

Minh-Khai Phan-Thi and Marcel Nguyen
Minh-Khai Phan-Thi and Marcel Nguyen

Since being diagnosed with blood cancer a few weeks ago, Joon has been fighting for her life. Born in Haiphong, Northern Vietnam, she was adopted as a baby and now lives in France with her family. Last year she started studying physics in Geneva in order to pursue her dream of becoming a scientist. But right now that dream suddenly seems a long way off because without a stem cell transplant she has no chance of recovering. A worldwide search is on but so far, no suitable donor has been found.

As soon as actress Minh-Khai Phan-Thi and gymnast Marcel Nguyen – both of Vietnamese origin – heard about Joon’s illness, they immediately agreed to help and are now appealing to people to join the stem cell donors’ register. The German Gymnastics Association (DTB) and especially its President Rainer Brechtken have also made a lasting commitment to fight for the needs of blood cancer patients.

“It’s great to have such high-profile supporters on our side in the fight against blood cancer. I hope that together we’ll be able to motivate people to register as donors,” says Claudia Rutt, managing director of the DKMS.

To Claudia it is especially important for people of all nationalities to join the DKMS register as potential donors because stem cell transplants require patient and donor tissue characteristics to match. These characteristics are determined by the person’s regional origins. “We inherit half our tissue characteristics from our father and half from our mother, and they depend on our parents’ regional origins. For Joon we are more likely to find a donor among the Vietnamese population.”

Claudia Rutt continues: “A lot of people living in Germany have their origins elsewhere. So to help blood cancer patients from all parts of the world, we need plenty of donors from all different places. Help us get as many people to join the DKMS donors’ register as we possibly can! That way, we can give as many blood cancer patients as possible a chance to survive.”

You can register online anytime

in Germany = http://www.dkms.de/joon!
in Poland = http://www.dkms.pl/dawca/rejestracja/index.html
in United Kingdom = http://www.deletebloodcancer.org.uk/joon
in USA = http://www.deletebloodcancer.org/joon